CLOVES Syndrome Community is pleased to announce that the National Institutes of Health has expanded.....
We are pleased to announce that CLOVES Syndrome Community will be receiving a portion of the proceeds from the Evans Open....
Have you or your child been recently diagnosed with CLOVES Syndrome? If so, welcome to our community....
Happy Holidays from CLOVES Syndrome Community – we wish all of our families, friends and supporters a happy and healthy holiday season. 2012 has been a quite a busy and fruitful year for our organization. Before ramping up to our goals for 2013, we want to reflect on the work that has happened in the past 12 months.
The CLOVES Syndrome Community Board of Directors is pleased to announce...
Learn about a new research opportunity for CLOVES patients....
We are delighted to announce that we are accepting applications for our CLOVES Family Scholarship Program....
We are so excited to announce that researchers at Boston Children's Hospital have identified the genetic cause for CLOVES....
The Frequently Asked Questions (FAQ) section of the CSC website has been updated and Boston Children's Hospital has a newly created CLOVES webpage....
CLOVES Syndrome is being featured in a special series with CommonHealth/WBUR called The Life Of Riley: A Rare Girl, A Rare Disease
Registration is now open for CLOVES Family Conference scheduled for August 11, 2012
Beginning plans are underway for the 2nd Annual CLOVES Family Conference
The Vascular Anomalies Center team at Children’s Hospital Boston recently
CSC Board of Directors, Medical Advisory Board and supporters are starting the planning
We are pleased to announce that CLOVES Syndrome Community has been determined a 501 (c)(3) organization!
Secure credit card donations are now available on the CLOVES Syndrome Community website....
CLOVES Syndrome Community is seeking 501(c) (3) status and will be a not–for profit, organization in the very near future. Our mission is to support, educate, empower and improve the lives of those affected by CLOVES Syndrome.
In March 2011 at the first CLOVES Family Gathering, many people with CLOVES donated saliva and/or blood....