News
New Research Opportunity with the National Institutes of Health
4/22/13
CLOVES Syndrome Community is pleased to announce that the National Institutes of Health has expanded.....
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Golf Event in Rhode Island on May 14th in Rhode Island
4/21/13
We are pleased to announce that CLOVES Syndrome Community will be receiving a portion of the proceeds from the Evans Open....
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Newly Diagnosed? Welcome to our Community......
2/1/13
Have you or your child been recently diagnosed with CLOVES Syndrome? If so, welcome to our community....
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Happy Holidays! 2012 in Review.....
12/21/12
Happy Holidays from CLOVES Syndrome Community – we wish all of our families, friends and supporters a happy and healthy holiday season. 2012 has been a quite a busy and fruitful year for our organization. Before ramping up to our goals for 2013, we want to reflect on the work that has happened in the past 12 months.
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First CLOVES Family Scholarship awarded!
11/14/12
The CLOVES Syndrome Community Board of Directors is pleased to announce...
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NEW! Research Opportunity & Visuals of PIK3ca Pathway
9/13/12
Learn about a new research opportunity for CLOVES patients....
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CLOVES Family Scholarship program - Accepting applications
7/30/12
We are delighted to announce that we are accepting applications for our CLOVES Family Scholarship Program....
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Genetic cause for CLOVES identified!
5/31/12
We are so excited to announce that researchers at Boston Children's Hospital have identified the genetic cause for CLOVES....
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Newly Updated Frequently Asked Questions & CLOVES page on Boston Children's Hospital Website
5/29/12
The Frequently Asked Questions (FAQ) section of the CSC website has been updated and Boston Children's Hospital has a newly created CLOVES webpage....
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CLOVES Syndrome in the news!
4/7/12
CLOVES Syndrome is being featured in a special series with CommonHealth/WBUR called The Life Of Riley: A Rare Girl, A Rare Disease
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Registration Open for CLOVES Family Conference
3/30/12
Registration is now open for CLOVES Family Conference scheduled for August 11, 2012
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2nd Annual Family Conference Details
2/29/12
Beginning plans are underway for the 2nd Annual CLOVES Family Conference
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Recommended Kidney Screening
2/10/12
The Vascular Anomalies Center team at Children’s Hospital Boston recently
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CLOVES Family Conference planned for Summer of 2012
1/27/12
CSC Board of Directors, Medical Advisory Board and supporters are starting the planning
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Non Profit Status Approved!!!
1/11/12
We are pleased to announce that CLOVES Syndrome Community has been determined a 501 (c)(3) organization!
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Secure credit card DONATIONS now available...
10/27/11
Secure credit card donations are now available on the CLOVES Syndrome Community website....
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CSC seeking non profit status!
10/14/11
CLOVES Syndrome Community is seeking 501(c) (3) status and will be a not–for profit, organization in the very near future. Our mission is to support, educate, empower and improve the lives of those affected by CLOVES Syndrome.
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Research News
6/1/11
In March 2011 at the first CLOVES Family Gathering, many people with CLOVES donated saliva and/or blood....
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This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit organization. All donations are tax exempt.