Medical Resources
CLOVES Kidney Screening Protocol - Recommended kidney screening for all kids with CLOVES, developed February 2012
A comprehensive list of questions to ask your child's doctor/your doctor about CLOVES
Guidelines for Imaging Vascular Anomalies
Guidelines for MRI Sequences, MRI, Angiogram and Ultrasounds developed by Children's Hospital Boston
Para/intra-spinal AVM
Descriptions of types of Vascular Anomalies
In depth look at capillary malformations, venous malformations, arterio-venous malformations (AVM), lymphatic malformations and mixed
Trunk port wine stain
One page explanation of current research on CLOVES Syndrome
Image and description from the National Institutes of Health (NIH)
Description and images from US National Library of Medecine
Navigating the Ecosystem of Translational Science (NETS thru Genetic Alliance)
A map and guide developed by Genetic Alliance of the drug development process
Abdominal Lipoma
Glossary of commonly used terms for CLOVES Syndrome and other Vascular Anomaly syndromes
Developed by parents of children with complex vascular anomaly syndromes
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