Welcome to the C.L.O.V.E.S. Syndrome Community

Board of Directors

Brenda J. Alexander

Secretary, CLOVES SYNDROME COMMUNITY

Brenda joined the CLOVES SYNDROME COMMUNITY online before it became a formal organization in the summer of 2011.  She participated in small-scale fundraising efforts for CLOVES patients since 2002.  In March 2011, Brenda became more actively involved in the CLOVES community through the CLOVES family conference held at Children’s Hospital Boston. 

Brenda is a certified Elementary and Special Needs Teacher.  She works in a public elementary school in Massachusetts as a Special Education Teacher with young students identified with learning disabilities.  Additionally, Brenda is a community volunteer in a variety of child-centered organizations.  Recent responsibilities include fundraising for the York Education Foundation, organizing Little League fund-raisers and celebration ceremonies, fund-raising for local Scout Troops, and running church auctions for Youth Ministry activities. 

Brenda has lived in Massachusetts and Maine with her husband John, daughter Callie, and son Ben.

Adrienne Davis Guier

Board Member, CLOVES SYNDROME COMMUNITY

Kristen Davis

Chair of Board of Directors

Executive Director of CLOVES SYNDROME COMMUNITY

Kristen Davis started the CLOVES Syndrome Community website and support system in 2009, after her daughter Riley was diagnosed with CLOVES.  At that time, no formal organization existed to support families with a loved one with this rare syndrome.  CLOVES Syndrome Community was developed with the understanding that when parents and loved ones are informed, empowered, and connected with others facing similar challenges, they will be better equipped to support their children’s, or their own, medical, emotional and physical needs.

Kristen is an advocate for people affected by rare diseases and chronic illnesses and enjoys collaborating with other organizations for people with complex vascular anomaly syndromes.   Additionally, Kristen loves learning how current social media trends are affecting health care and patient advocacy.  Her educational background is in Social work, social justice and English.  Recent volunteer responsibilities have included Girl Scout Leader and Advisory Committee submissions reviewer for the Rare Children’s Storybook Project and Member of the Children's Hospital Boston Family Advisory Council (FAC).

Kristen lives in Maine, with her husband Marc, son Cole and daughter Riley.

Amanda E. Martin

Vice Chair, CLOVES SYNDROME COMMUNITY

Amanda’s son Ryan was diagnosed with CLOVES Syndrome shortly after birth in the spring of 2010 at the Vascular Anomalies Center at Children’s Hospital Boston.  Once Ryan was diagnosed Amanda came into contact with Kristen Davis, Chair of CLOVES Syndrome Community, through her website clovessyndrome.org shortly after Ryan’s diagnosis.  The site helped inform her family of the syndrome so few knew about and Kristen became a friend who could relate.  Amanda became more actively involved with CLOVES Syndrome community through the CLOVES family gathering held at Children’s Hospital Boston. 

Amanda is a Digital Analyst for LIN Media, based in Providence, RI.  Amanda lives in Rhode Island with her husband, Keith Martin and son Ryan.

Ashley McNamara

Treasurer, CLOVES SYNDROME COMMUNITY

Ashley joined the CLOVES SYNDROME COMMUNITY during the process of becoming a formal organization in the summer of 2011.  She has participated in small-scale fundraising efforts for CLOVES patients since 2002.

Ashley is a certified public accountant and is the Director of Accounting at an oil and gas company.  Additionally, Ashley serves on the board for the Tristesse Grief Center in Tulsa, Oklahoma and participates in various community events. 

Ashley lives in Tulsa, Oklahoma with her husband Steve. 

Jane Wallingford

Board Member, CLOVES SYNDROME COMMUNITY

Jane has been a Board Member of the CLOVES SYNDROME COMMUNITY since March 2012.

Jane is a management consultant, specializing in program management and strategic communications strategy for public sector clients.  She also volunteers in the Washington, DC community with the Junior League of Washington, developing and facilitating training programs for women in recovery programs.

Joe Marcoccio

Board Member, CLOVES SYNDROME COMMUNITY

Bio coming soon.....