Member Stories
Giovanni has a had a hard life but he is a fighter. He has amazed us all and is a miracle baby. We love him very much.
Ryan is diagnosed with CLOVES Syndrome.
Riley's name means courage and every day she reminds us what is most important in life. Check out The Life Of Riley: a special project by WBUR/Boston Public Radio.
Aedan is an amazing 21 month old with two major surgeries coming up..
Emaleigh's Story and CaringBridge page
Emaleigh was born at Virginia Baptist Hospital after only 28 weeks
Nicholas is three and a half years old and was first diagnosed with Proteus-like syndrome & KTS
In March 2010 our second son Mats was born at 33 weeks in the university clinic of Antwerp, Belgium
Each of us has one hero whom we can look up to during the course of our lives
Due to increased amniotic fluid (polyhydramnios), Sharee was born at 32 weeks gestation rather than the usual 40 weeks
Our third son Samuel was born in April 2009, right around 40 weeks
If you'd like your story or your child's story on this page, just email us at clovessyndrome@gmail.com and let us know.
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