Welcome to CLOVES Syndrome Community
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CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis and was identified simultaneously and independently by Saap et al. and Alomari.
Our best estimate is that CLOVES Syndrome has been diagnosed in about five hundred people so far.